The Children's Tumor Foundation
12/18/2025 | Press release | Distributed by Public on 12/18/2025 14:45
A New Research Opportunity For People Living With NF1 And Plexiform Neurofibromas
The Children's Tumor Foundation (CTF) is pleased to bring forward this research opportunity: Healx is recruiting participants ages 12 and above in the U.S. with NF1 and plexiform neurofibromas (PNs) for the INSPIRE-NF1 (NF119) study.
The study will evaluate whether the investigational drug HLX-1502 can shrink PNs or stop them from growing and assess its effects on quality of life and pain.
To participate, you must:
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Have a diagnosis of NF1
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Have a plexiform neurofibroma
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Be 12 years or older
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Live in the United States
Participants attend clinic visits, undergo MRI and safety evaluations, and take the study medication three times daily. Medication is provided at no cost, and Healx will reimburse part of travel expenses to clinic sites.
To learn more, visit this clinical trials link or view their participant flier .
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The Children's Tumor Foundation published this content on December 18, 2025, and is solely responsible for the information contained herein. Distributed via Public Technologies (PUBT), unedited and unaltered, on December 18, 2025 at 20:45 UTC. If you believe the information included in the content is inaccurate or outdated and requires editing or removal, please contact us at [email protected]