Bridging Gaps Across the NF1-PN Care Continuum

A continuing medical education (CME) activity for healthcare professionals caring for pediatric and adult patients with neurofibromatosis type 1 with plexiform neurofibromas (NF1-PN).

Managing NF1-PN requires a coordinated approach across a patient's lifetime. Timely diagnosis, appropriate treatment selection, and continuity of care are essential-particularly as patients transition from pediatric to adult care settings.

Bridging Gaps Across the NF1-PN Care Continuum brings together expert faculty to explore treatment decisions, proactive management of adverse events, and practical strategies for addressing gaps in care.

Program Details & Access

• Register here to access the program when it becomes available on October 21, 2026. It will be available on-demand until October 21, 2027.
• Intended audience: This activity is intended for medical oncologists, nurse practitioners, physician assistants, and other aligned healthcare professionals involved in managing pediatric and adult patients with NF1-PN.

About the Activity

NF1-PN is a rare, progressive condition that spans pediatric and adult care settings. This CME session reviews the pathophysiology of NF1-PN, the rationale for MEK inhibition, and the latest efficacy and safety data on approved and emerging MEK inhibitors.

Through a real-world patient case discussion, faculty will demonstrate practical strategies for proactive adverse event management, multidisciplinary team coordination, and maintaining continuity of care as pediatric patients move into adult settings.

Participants will gain evidence-based frameworks to individualize treatment decisions and counsel patients and caregivers across the full NF1-PN care continuum.

Learning Objectives

After participating in this activity, learners will be able to:

• Describe key challenges with transitions of care for patients with NF1 moving from pediatric to adult care.
• Apply evidence-based, practical, proactive strategies to manage adverse events and coordinate care for pediatric and adult patients with NF1.

Topics Covered

The activity will explore:

• Understanding NF1: Natural history, genetics, and disease burden.
• Treatment approaches: The rationale for MEK/ERK inhibition, a review of systemic therapies, and case-based approaches to individualized treatment.
• Managing adverse events: Common adverse events with systemic therapy, proactive versus reactive management, and how adverse events affect daily life and treatment adherence.
• Supporting treatment continuity: Setting patient expectations to help prevent treatment discontinuation.
• Navigating care transitions: Structural gaps between pediatric and adult systems, multidisciplinary team roles, and real-world transition successes and challenges.
• Centering the patient experience: What patients wish clinicians understood sooner and strategies for proactive communication with patients and families.

Faculty

Carlos Romo, MD

Assistant Professor of Neurology, Oncology and Medicine
Director of Clinical Research, The Neurofibromatosis Therapeutic Acceleration Program
Johns Hopkins University School of Medicine

Devorah Segal, MD, PhD

Assistant Professor of Neurology and Pediatrics
NYU Langone and NYU Grossman School of Medicine

Contact Information

Accreditation Support:
For information about the accreditation of this program, please contact Global at 303-395-1782 or [email protected].

Technical Support:
For any technical issues or issues with your CME Certificate, please contact Medlive at 877-394-1306 or [email protected].

Acknowledgment

This activity is supported by an educational grant from SpringWorks Therapeutics, Inc.

JOINT ACCREDITATION STATEMENT
In support of improving patient care, this activity has been planned and implemented by Global Education Group (Global) and MedliveCME, LLC (previously known as PlatformQ Health Education, LLC). Global is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC) to provide continuing education for the healthcare team.

PHYSICIAN CREDIT DESIGNATION
Global Education Group designates this enduring activity for a maximum of 0.5 AMA PRA Category 1 Credit(s)™. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

ESTIMATED TIME TO COMPLETE
This activity should take approximately 30 minutes to complete.

INSTRUCTIONS TO RECEIVE CREDIT
In order to receive credit for this activity, the participant must (1) read the target audience, learning objectives, and disclosure statements, (2) complete the educational activity online, and (3) complete the post-test and activity evaluation. To receive AMA PRA Category 1 Credits™, participants must receive a score of 70% on the post-test.

HARDWARE/SOFTWARE REQUIREMENTS
Participants will need a computer with a recent version of Adobe Flash installed, as well as an internet connection sufficient for streaming media.

FEE INFORMATION & REFUND/CANCELLATION POLICY
There is no fee for this educational activity.

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