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The Children's Tumor Foundation
02/13/2026 | Press release | Distributed by Public on 02/13/2026 14:23
Story of NF: Kamila O.Empty heading
This story was submitted by Guadalupe, Kamila's mother.
A young girl with shoulder-length dark hair wearing a pink shirt and a headband with a blue bow sits in the backseat of a car, smiling slightly at the camera.My daughter was diagnosed at 2, she's 3 years old now. I never thought she was gonna have this condition until I noticed on her body, a bunch of marks that kept coming out, and the one in her left arm kept growing bigger and bigger each time, so I'm like, this is not normal. I'm gonna get her checked because in my family, my brother has NF1. I decided to go get her checked, and they in fact, stated that she does have an NF1.
At the moment, it's been hard because she has lots of therapy, lots of appointments, and they already found nine tumors, especially one in her stomach near her spinal cord. Doctors say that at the moment, it's not affecting her, but she will need further MRIs frequently because tumors can grow and crush things inside. They are monitoring her at the moment, still learning about this condition, and I'm still trying not miss her appointments. With everything going on, I just don't want her to have anything wrong. I'm just worried about the tumors as time is passing by and she's growing up, and because my daughter has autism and global developmental delay, I'm concerned about that if it's gonna affect her too.
A young girl wearing a paper crown stands indoors, holding a small orange object and looking at the camera. She is dressed in a black shirt, jeans, and patterned shoes.
A young child with wavy hair sits at a wooden table, looking at the camera with a neutral expression. There is a blurred object in the foreground on the right.
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The Children's Tumor Foundation published this content on February 13, 2026, and is solely responsible for the information contained herein. Distributed via Public Technologies (PUBT), unedited and unaltered, on February 13, 2026 at 20:23 UTC. If you believe the information included in the content is inaccurate or outdated and requires editing or removal, please contact us at [email protected]