10/28/2026 | Press release | Distributed by Public on 10/28/2026 10:15
The Independent Expert on the human rights of persons with albinism, established in 2015 by the Human Rights Council and renewed by consensus since then, has been, and remains, a vital tool in raising awareness of the challenges and discrimination faced by people with albinism around the world and documenting them in depth, including their different dimensions and geographical variations. The mandate has helped governments and policy makers identify concrete measures to better respect, protect and fulfil their rights, and to combat discrimination, violence and harmful stereotypes.
Albinism is a genetic condition characterized by reduced or absent melanin, commonly resulting in low vision and extreme sensitivity to ultraviolet radiation. Across sub-Saharan Africa, persons with albinism are estimated to be up to 1,000 times more likely to develop skin cancer than the general population. Across the world, persons with albinism continue to face stigma and intersecting and aggravated forms of discrimination, insecurity, and barriers to work, education, health care, and social security, undermining their rights, income security, and equal participation. In some countries, persons with albinism also continue to face violence.
Deeply rooted myths and harmful beliefs have fueled killings, abductions, sexual violence, grave desecrations targeting the remains of persons with albinism, and other abuses in a number of countries. Although reported attacks appear to have declined in recent years in some countries, the fear, insecurity, and exclusion resulting from decades of violence remain a daily reality for many. At the same time, cases are being reported in countries where none had previously been documented, including Madagascar, where cases were first reported in 2021. Furthermore, preventable deaths from skin cancer, limited access to vision-related support services, and persistent discrimination in employment opportunities and in other spheres continue to impede the enjoyment of fundamental rights.
These challenges are distinct in both their nature and their scope. The unique focus brought by a dedicated mandate holder has enabled a nuanced cross-cutting approach to the specific and interrelated range of rights issues faced by people with albinism. It has elevated these issues as rights concerns, whose invisibility is often at the heart of the problem. The mandate has also provided a global platform for advocacy and coordination, strengthening the albinism movement, facilitating the exchange of good practices, and highlighting the need for further legislative and policy reform.
Persons with albinism face unique and often life-threatening risks that require dedicated attention and targeted responses. The mandate's core functions of raising awareness and understanding at local, national, regional and international levels, supporting the development of policy and legislative measures to better respect, protect, and fulfil rights, promoting accountability, and amplifying the voices of persons with albinism remain essential to addressing these persistent challenges.
Over the past decade, the mandate's thematic reports have shaped global discourse and raised awareness and understanding of the specific challenges faced by persons with albinism in the enjoyment of their rights. They have helped elevate a range of previously underreported issues, from attacks and killings to the wider consequences of stigma and discrimination, including barriers in education, employment, the psychosocial impact of color-based discrimination, and the disproportionate impact of climate change on persons with albinism. The mandate has worked to advance the inclusion of persons with albinism in discussions in which they have often remained invisible and left behind, resulting in further violations of their rights. These have included discussions on persons with albinism on the move, human rights defenders with albinism, and the right to family life.
The mandate's country visits across all continents, together with other collaborative initiatives, have helped foster greater understanding of albinism as a human rights issue at the local, national, regional, and international levels. Examples of this impact include:
The mandate has played an important role in promoting laws, policies and other measures to protect the rights of persons with albinism and address the discrimination and challenges they face. Through engagement with affected communities and key stakeholders, it has helped inform and advance policy and legislative responses at the national level.
Some examples of impact reported in this regard at national level include:
The mandate has also contributed to the adoption of regional standards and guidelines. For example:
The mandate has also driven global protection through engagement at international level. For example:
The Independent Expert has supported governments to provide advice and guidance on law and policy implementation. For example, the mandate has:
Meaningful engagement with persons with albinism, civil society organizations, and victims of violations and their families has been central to the work of the mandate. These exchanges have informed the mandate's understanding of protection gaps and human rights challenges, while supporting advocacy, accountability, and efforts to advance the rights of persons with albinism.
As discussed, despite the significant impact the mandate has had over the past decade, persons with albinism around the world continue to face human rights violations. Continued progress requires sustained attention to the full range of human rights violations they face. The mandate provides a unique focal point for these efforts, bringing together issues that cut across health, disability, equality, and protection from violence, and ensuring sustained visibility. While a range of actors within the United Nations contribute to the advancement of these objectives, the mandate plays a unique role by providing an independent, dedicated, and globally recognized focal point for monitoring, advocacy, and engagement on the human rights of persons with albinism. Its proven track record, outlined above, demonstrates both what can be achieved through dedicated attention and why that attention remains necessary.
Access to health, education and employment
Over the past decade, the mandate of the Independent Expert on the enjoyment of human rights by persons with albinism has played a critical role in building a comprehensive understanding of the situation of persons with albinism and documenting it in depth, including its diverse manifestations across regions and contexts. Through awareness-raising, technical assistance, engagement with governments and regional bodies, and close collaboration with persons with albinism and civil society organizations, the mandate has contributed to concrete policy, legislative, and institutional progress at national, regional, and international levels.
However, significant challenges persist, and the progress achieved has not resolved the various issues identified. Violence, discrimination, barriers to health care, humanitarian assistance, education, employment, and justice, and the emerging impacts of climate change continue to affect persons with albinism in many parts of the world.
It is therefore essential that the mandate continue, not only to address emerging issues, but also to revisit the topics covered in previous reports and reassess the situations documented, in order to determine what has changed and measure progress over time.
As these challenges evolve, sustained international attention and accountability remain essential. Renewing the mandate would be crucial to follow up on the numerous recommendations made following thematic and country visits to ensure continued progress, support implementation of existing commitments, and advance the full and equal enjoyment of human rights by persons with albinism worldwide. Such follow-up would help identify progress, persistent gaps and lessons learned, while encouraging governments to sustain and strengthen their efforts.
Office of the United Nations High Commissioner for Human Rights (OHCHR), "Mandate of the Independent Expert on the Human Rights of Persons with Albinism," https://www.ohchr.org/en/special-procedures/ie-albinism/mandate-independent-expert-human-rights-persons-albinism (accessed September 24, 2026).
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2025, UN Doc. A/HRC/58/57, https://docs.un.org/en/ A/HRC/58/57 (accessed September 24, 2026).
Ibid.
Human Rights Watch, "'I Just Want to Work Without Fear:' Discrimination and Violations of the Right to Work for Persons with Albinism in Malawi," June 2026 https://www.hrw.org/sites/default/files/media_2026/06/drd_malawi0626web_0.pdf.
United Nations Children's Fund (UNICEF), "In Madagascar, UNICEF Condemns Crimes Committed Against People with Albinism and Is Committed to Working with All Stakeholders for Their Protection," press release, March 7, 2022, https://www.unicef.org/madagascar/en/press-releases/madagascar-unicef-condemns-crimes-committed-against-people-albinism-and-committed (accessed September 24, 2026).
United Nations General Assembly, Social Development Challenges Faced by Persons with Albinism: Report of the Secretary-General, A/72/169, July 19, 2017, https://docs.un.org/en/A/72/169.
International Service for Human Rights (ISHR), "HRC61: ISHR, GAA Stress Value of UN Mandate on Human Rights of Persons with Albinism," June 2026, https://ishr.ch/latest-updates/hrc61-ishr-gaa-stress-value-of-un-mandate-on-human-rights-of-persons-with-albinism/ (accessed October 2, 2026).
Office of the United Nations High Commissioner for Human Rights (OHCHR), "Annual Thematic Reports," Independent Expert on the Enjoyment of Human Rights by Persons with Albinism, https://www.ohchr.org/en/special-procedures/ie-albinism/reports (accessed September 24, 2026).
Ibid.
OHCHR, "Country Visits," Independent Expert on the Enjoyment of Human Rights by Persons with Albinism, https://www.ohchr.org/en/special-procedures/ie-albinism/country-visits (accessed September 24, 2026).
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2025, UN Doc. A/HRC/58/57, https://docs.un.org/en/ A/HRC/58/57 (accessed September 24, 2026), para 19.
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2019, UN Doc. A/HRC/40/62/Add.3, https://docs.un.org/en/ A/HRC/40/62/Add.3 (accessed September 24, 2026), para 52.
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2023, UN Doc A/HRC/52/36/Add.1, https://docs.un.org/en/ A/HRC/52/36/Add.1 (accessed September 24, 2026), para 68.
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2025, UN Doc A/HRC/58/57/Add.1, https://docs.un.org/en/ A/HRC/58/57/Add.1 (accessed September 24, 2026), para 33.
OHCHR, "Portugal: Robust Implementation of Laws Necessary for Better Protection of Persons with Albinism, Says UN Expert," press release, November 26, 2025; and OHCHR, "Pakistan: Invisibility Inhibiting Full Enjoyment of Rights by Persons with Albinism, Says UN Expert," press release, June 11, 2026.
Brazil National Health Council, Resolution No. 725 of November 9, 2023, November 9, 2023, https://www.gov.br/conselho-nacional-de-saude/pt-br/atos-normativos/resolucoes/2023/resolucao-no-725.pdf/view.
Emma Keeling, "The Grim Hunt for Albinos in Mozambique," The New York Times, May 5, 2017, https://www.nytimes.com/interactive/2017/05/05/sunday-review/albinos-in-mozambique.html.
BBC World Service, "My Fight to Dispel Myths About Albinism," The Conversation, July 13, 2020, https://www.bbc.co.uk/programmes/p08qw162.
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2025, UN Doc. A/HRC/58/57, https://docs.un.org/en/ A/HRC/58/57. (accessed September 24, 2026), para 19.
Ibid.
Africa Albinism Network, "Tanzania's Historic Milestone: Adopting a National Action Plan on Albinism," August 29, 2024, https://africaalbinismnetwork.org/blog/tanzanias-historic-milestone-adopting-a-national-action-plan-on-albinism/.
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2025, UN Doc. A/HRC/58/57, https://docs.un.org/en/ A/HRC/58/57. (accessed September 24, 2026), para 18.
AU Plan of Action on Ending Attacks and Discrimination against Persons with Albinism (2021-2031), African Union, November 17, 2021, https://www.ohchr.org/sites/default/files/documents/issues/albinism/AU-Plan-of-Action-EN.pdf.
Guidelines for Parliamentarians on Accusations of Witchcraft and Ritual Attacks: Towards Eliminating Harmful Practices and Other Human Rights Violations, Pan African Parliament, March 15, 2023, https://flamingo-lynx-gkw4.squarespace.com/s/PAP-guideline.pdf.
Guiding Note on Reporting on the Rights and Welfare of Children with Albinism in Africa, African Committee of Experts on the Rights and Welfare of the Child, adopted April 2025, https://www.ohchr.org/sites/default/files/2025-10/guiding-note-welfare-children-albinism-africa-1-en.pdf.
The Global Albinism Alliance, https://www.albinismalliance.org/.
OHCHR, "UN Experts Welcome WHO Decision to Add Sunscreen to Model Lists of Essential Medicines," press release, September 24, 2025.
World Health Organization. The selection and use of essential medicines: report of the WHO Expert Committee, 2005: (including the 14th model list of essential medicines). World Health Organization technical report series; 933. Geneva, Switzerland: WHO Library Cataloguing in Publication Data; 2005.
OHCHR, "UN Experts Welcome WHO Decision to Add Sunscreen to Model Lists of Essential Medicines," press release, September 24, 2025.
Standing Voice, "Sunscreen Added to Medicine List," https://www.standingvoice.org/emlsunscreen (accessed October 2, 2026); Africa Albinism Network, "World Health Organization Updates List of Essential Medicines to Add Sunscreen," https://africaalbinismnetwork.org/blog/world-health-organization-updates-list-of-essential-medicines-to-add-sunscreen/ (accessed October 2, 2026).
Global Albinism Alliance, "Global Albinism Alliance Congratulates 'Albinos Chile' on Progress Toward Sunscreen Access for People with Albinism," statement, January 28, 2026, https://www.albinismalliance.org/files/280126-pr-attacks-chile-sunscreen.pdf.
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2025, UN Doc. A/HRC/58/57, https://docs.un.org/en/ A/HRC/58/57. (accessed September 24, 2026), para 19.
Lova Maël Rabemananjara, État des lieux de la situation des personnes atteintes d'albinisme à Madagascar, April 2023, https://africaalbinismnetwork.org/wp-content/uploads/2023/08/Rapport-EDL-PAA-VF.pdf; and Masauso Chirwa and Likando Kalaluka, Albinism and Rights in Zambia: An Exploration of Experiences, Sociocultural Conditions and Access to Justice, Study Report, Republic of Zambia Ministry of Community Development and Social Services, with support from UNICEF, 2023, https://www.unicef.org/zambia/media/7411/file/Albinism-and-Rights-Final-September.pdf.pdf.
International Disability Alliance, The CRPD and Refugee Law: A Discussion Paper, 2023, https://www.internationaldisabilityalliance.org/sites/default/files/discussion_paper_crpd_and_refugee_law_for_publication_2023.pdf.
OHCHR, "Communications of the Independent Expert on the Enjoyment of Human Rights by Persons with Albinism," Special Procedures Communications Database, https://spcommreports.ohchr.org/TmSearch/Mandates?m=266.
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2025, UN Doc. A/HRC/58/57, https://docs.un.org/en/ A/HRC/58/57. (accessed September 24, 2026), para 25.
Africa Albinism Network and Under the Same Sun, Attacks on Persons with Albinism in Malawi, Tanzania and Zambia, factsheet, December 2025, https://africaalbinismnetwork.org/wp-content/uploads/2026/04/Factsheet-AAN-UTTS-January-2026.pdf.
Africa Albinism Network, Statement of Civil Society Organizations on the Desacration of the Grave of a Woman with Albinism In Ngundi Village, Zambia, January 2026. https://africaalbinismnetwork.org/wp-content/uploads/2026/01/PRELIMINARY-STATEMENT-OF-CIVIL-SOCIETY-ORGANIZATIONS-ON-THE-DESECRATION-OF-THE-GRAVE-OF-A-WOMAN-WITH-ALBINISM-IN-NGUNDI-VILLAGE.pdf.
Statement of Civil Society Organizations on the Desecration of the Grave of a Woman with Albinism in Ngundi Village, Senanga District, Zambia, civil society statement, January 14, 2026, https://africaalbinismnetwork.org/wp-content/uploads/2026/01/PRELIMINARY-STATEMENT-OF-CIVIL-SOCIETY-ORGANIZATIONS-ON-THE-DESECRATION-OF-THE-GRAVE-OF-A-WOMAN-WITH-ALBINISM-IN-NGUNDI-VILLAGE.pdf.
Ritual Killing in Africa, "SADC Countries: Warning over 'Undercover Genocide' of Persons with Albinism," June 21, 2026, https://www.ritualkillinginafrica.org/2026/06/21/sadc-countries-warning-over-undercover-genocide-of-persons-with-albinism/.
Godfrey Masiko, "Man Arrested over Suspected Ritual Targeting of Boy with Albinism in Mayuge," Daily Monitor, August 14, 2025, https://www.monitor.co.ug/uganda/news/national/man-arrested-over-suspected-ritual-targeting-of-boy-with-albinism-in-mayuge-5423802.
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2025, UN Doc. A/HRC/58/57, https://docs.un.org/en/ A/HRC/58/57 (accessed September 24, 2026), para 8.
OHCHR, Access to Justice for Persons with Albinism: Challenges and Solutions in Zambia, published jointly by the Albinism for Change in Africa Initiative Organization, Albinism Foundation of Zambia, Albinism Multi-Purpose Organisation of Zambia, Butterfly Foundation of Zambia, and Light of the World Foundation, March 2025, https://www.ohchr.org/sites/default/files/documents/publications/access-justice-person-with-albinism.pdf.
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2022, UN Doc. A/HRC/49/56, https://docs.un.org/en/ A/HRC/49/56 (accessed September 24, 2026), para 81.
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2025, UN Doc. A/HRC/58/57/Add.1, https://docs.un.org/en/A/HRC/58/57/Add.1 (accessed September 24, 2026), para 32.
Ibid., para 12.
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," January 2024, UN Doc. A/HRC/55/45, https://docs.un.org/en/ A/HRC/55/45 (accessed September 24, 2026), para 15 to 23; UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," March 2026, UN Doc. A/HRC/61/53, https://docs.un.org/en/A/HRC/61/53 (accessed September 24, 2026); and Human Rights Watch "'I Just Want to Work Without Fear' Discrimination and Violations of the Right to Work for Persons with Albinism in Malawi" (New York: Human Rights Watch 2026), https://www.hrw.org/report/2026/06/12/i-just-want-to-work-without-fear/discrimination-and-violations-of-the-right-to.
UN Independent Expert on the Enjoyment of Human Rights by Persons with Albinism, "Statement on the enjoyment of human rights by persons with albinism," March 7, 2025, https://www.ohchr.org/en/statements-and-speeches/2025/03/statement-enjoyment-human-rights-persons-albinism (accessed September 24, 2026).
UN Independent Expert on the Enjoyment of Human Rights by Persons with Albinism, "Statement on the enjoyment of human rights by persons with albinism," March 7, 2025, https://www.ohchr.org/en/statements-and-speeches/2025/03/statement-enjoyment-human-rights-persons-albinism (accessed September 24, 2026).
OHCHR, "Climate Change Puts People with Albinism at Grave Risk: UN Expert," press release, October 19, 2023.
Ibid.
Ibid.
UN Human Rights Council, "Report of the Independent Expert on the Enjoyment of All Human Rights by Persons with Albinism," March 2026, UN Doc. A/HRC/55/45/Add. 1, https://docs.un.org/en/A/HRC/55/45/Add.1. (accessed September 24, 2026), paras 11-12.
Ibid., para 74.